Tuesday, December 31, 2013

No more seats

A few months ago, I bought a Groupon for myself and Jeff to see Josh Groban. He had a concert in Philadelphia in November. I even called the venue prior to buying the tickets and they said I could still get accessible seating even with the Groupon.

To make a long story short - not true.  I couldn't get a wheelchair accessible seat. Thank God that I didn't just show up as told. Groupon finally did refund my money, but it made me think.  It's very annoying when there's only a handful of accessible seats yet hundreds even thousands of non accessible seating.  

Discrimination comes in all versions. It's ashame when having a disability the number of times one is discriminated against.

Monday, December 30, 2013

Good bye December

December is almost gone. It has been a very good month all things considered. December is probably my favorite month because it involves many of my favorites:  shopping, decorating, cleaning, wrapping, family and all kinds of busy.

Jason turned ten months on December 20. He has grown and developed in many ways. He can now sit up on his own, crawling all over, sleeping through the night, has great fine motor skills and has the best sense of humor. Jason has two bottom teeth.

Laura has excellent grades in school. She has the most interesting outlooks and is adorable in every way. Laura is reading at a third grade level pushing fourth. She knows more Spanish than I did as a freshman in high school. 

I've been perspective about my career. I am focusing my attention on teaching, my children.  As far as writing, I'm downsizing at the Examiner. The pay is ridiculous for the energy to research and write. I'm going to keep my blogs, web site job, slowly write my book and get my new web site going.

I'm also going to continue playing hockey and doing public speaking. 


Sunday, December 15, 2013

The Purpose and Love of Marriage

I'm in process of reading the book called, "The Purpose and Love of Marriage." It was a free download on Kindle yesterday. I'm always interested in outlooks on marriage.

So far I really like the book and it's forcing me to look at my marriage in a new way. One thing I really like is how it validates the importance of marriage in a day where divorce and living together is the norm.  Marriage is vital.

Too many times, we miss direct our personal feelings to our marriage. Marriage is it's own separate identity. It's what we make it and feed into it. We can feel hurt for a moment but it doesn't mean the marriage is in horrible condition.

Media wants to tear marriage down by always showing adultery, divorce, flirtatious behavior, living together etc.  It makes me wonder why. Along with parenting, marriage is one of the hardest jobs we love. Married couples need support. Not a mockery of marriage everywhere you turn.

I also like the visualization that marriage is the slow formation of a diamond. Two people joining, solving problems, growing together, changing rubbing to make a beautiful diamond in the end.

Anyway, I recommend this book so far!

Saturday, December 14, 2013

Santa Claus

We took Jason and Laura to see Santa on Wednesday to see Santa. It was Jason’s first time. Laura didn’t go at 3 months but every year after.

After teaching, Jason and I went with Jeff to pick up Laura and headed to the mall. We wanted to avoid crowds, and we did. Both kids fell asleep on the way.

When we arrived, we had Laura change into her Christmas dress. She looked great! Her grandmother got it for her.

When in the bathroom getting  Laura ready, I received a call that my new power chair could be delivered on Tuesday! It’s hard to describe how I felt other than like I was 5 and it’s Christmas Eve.

When we arrived to the Santa area, he came to me. I believe he thought I was there to see him. I was polite and how can you not be nice to Santa?

At first, Jason was cool with Santa. He was into the ball of the on his hat. But then he took a better look and realized another person was holding him. He started crying but we tried the best to keep him happy and snap a picture!

One year Sandy Hook

My mind is on Sandy Hook today. I remember sitting in a restaurant at the King of Prussia Mall when the news text came on my phone.  I just wanted to leave and pick up Laura! She was also in kindergarten. 

The horror of that day is too much for minds and hearts. I can only imagine how the parents felt and still feel. Everyone feels loss differently and it's arrogant to even think I could relate. Just to imagine that happening to my son or daughter makes every bone ache.

I pray that they are happy in God's love awaiting the day they are reunited with their parents and siblings. I pray nothing like that ever happens again. I also pray for the families to even find any ounce of peace or calmness in their souls.

I appreciate all the moments with Laura and Jason.  Each day is a mystery and never know how our story ends.

Friday, December 13, 2013

My Dad

My Dad celebrated his birthday Thursday. He is a very private person so I'm not going to write a lot about him. However, I love him very much. I'm very much like him and as I get older, he is right almost always.  I think his true calling in life is being a father and grandfather. 

He challenges me and never let me use my disability as an excuse to not excel.  He strengthens my faith in God. He has always been there when I needed him. He was there in my biggest victories and my worst choices. I completely know he loves me unconditionally.

I hope I can be as good as a parent as he is. He truly is a role model of love, caring, and fatherhood. Happy Birthday,  Dad!

Hobbit Desolation of Smaug

Today I saw the Hobbit Desolation of Smaug.  Last year I went with Jeff and really can't tell you a whole lot because I fell asleep.  I like to blame it on pregnancy because I'm sure it was an excellent movie.

I liked the Hobbit Desolation of Smaug. It kept my attention from start to finish. Luckily, the theater we were in had good handicapped seating. Some theaters put you way too close to the screen forcing a stiff neck!

The action and scenery were amazing. And the dragon. You tend to believe its real.  I know I'm writing this tired but you really need to go see the movie.

Friday, November 29, 2013

Rittenhouse Teddy bear tea

Are you looking for an elegant afternoon with your child? The Rittenhouse Hotel in Philadelphia is featuring a Teddy Bear Tea until December 31 between 11:30-2. Reservations are encouraged. 

When you arrive at the luxurious Rittenhouse Hotel, signs point you to the Mary Cassatt tea room. The very polite and delightful staff will take you to your beautiful table. The child will be excited to see their stuffed teddy bear. The teddy bear is theirs to keep.

The table is elegantly laid out with white china. The staff will swiftly offer you a choice of water and champagne for the adults. Children are offered delicious hot chocolate. 

The choice of tea is wonderful. I recommend the tea called the Duchess First Love. To me, it tastes like Christmas in a cup. If you love tea, you will love all of the selections.

After the tea is selected, you will receive bite size lunch Heaven. The children will receive more child directed food. Everything was absolutely delicious complete with pumpkin bread and scones. The chicken salad and beef tatar were scrumptious.

The staff was marvelous.  They filled your tea and water almost instantly. They did everything possible to make you feel comfortable and as if you were royalty.

Dessert didn't disappoint and had variety for everyone. Mostly everything was bite size and made your taste buds rejoice. The children also had teddy bear cookies.

At the end, the children were read to in a cozy library setting. It was the perfect ending to an enjoyable afternoon. We left with smiles, full bellies and everlasting memories.

To make reservations, call 215-790-2533. Visit the web site at www.rittenhouse.com. The cost is $60 per adult and $30 per child.

Thursday, November 21, 2013

Cold school mornings

Every morning I often dread waking up to take Laura to the bus. I feel jealous and even angry sometimes when I see my husband sleeping as I get up. One human flaw usually is being selfish.

However, when she leaves on her bus, I feel awful silly for my negative feelings. I feel very blessed to have spent the last 40 minutes with such a sweet, smart and funny person. I think, yes, once a week I wouldn't mind staying in bed but the rest of the week, I'd be missing out.

My heart melts when I hear her whisper carefully in a way not to wake her brother - "Good morning, Mommy." Then we talk quietly and she might tell me small details about school or friends.

She helps me buckle my seat belt and we watch a little bit of a movie on Netflix as she eats breakfast. Then at the bus stop, we review spelling words and Spanish. When the bus comes, I always tell her that I love her, do her best and I'll see her later. She flashes a big smile and waves as the bus pulls away.

Laura is such a gentle soul with wisdom beyond her years! I'm not saying tomorrow morning, I won't feel the same as I pull myself out of my warm, cozy bed. However, I know I shouldn't feel jealous of Jeff but vice versa. I get my 40 minutes with an angel. 


Tuesday, November 19, 2013

Thanksgiving

Thanksgiving is coming up soon. If you are hosting, the menu choices can cause stress. Everyone wants to have enough and provide guests the food they most crave. Take a big deep breath and use this guide to help.

How big of a turkey? The size of a turkey depends on the number of guests you are expecting. A general rule of thumb is a pound per person. So if you are having 10 people, you buy a 10 pound turkey.  

Let us say you are having 20 guests. Buy two ten pound turkeys. They are easier to defrost and cook opposed to a twenty pound turkey.

Defrost the turkey by putting it in the coldest part of the refrigerator. Give it five hours for every pound according to Martha Stewart magazine. 

Ask your guests to bring something but tell or suggest what they bring. This way you know what is coming. Make it a group effort!

Stuffing, green beans, cranberry sauce, mashed potatoes, corn and turkey make a delightful Thanksgiving. Don't forget the pumpkin pie and cool whip.

Happy Thanksgiving!

Sunday, November 17, 2013

November is health care and hospice month

November is home care and hospice month. In the last ten years, the need for home care and hospice has rose considerably. November is the time to remember all those individuals who have the heart and soul to provide care.

Home care is the alternative to going into a nursing facility or an institution. Employees come in to help and provide care in the comfort of their home. Without these employees, home care would not be possible.

Remember this month the people that give your friends, family members or even yourself care. Yes, they are getting paid, but they work hard everyday. Many times they go over and beyond what the job duty entails.  They often treat their clients like family.

 Simply say thank you after they perform a task and when they leave for the day. Little gifts or tokens of appreciation are very nice too. Everyone likes to feel appreciated and their work means something. 

Have a happy home care and hospice month! Spread the love!

Friday, November 15, 2013

Blind man get kicks off a plane

We have all seen on the news about the man who is blind being kicked off the plane in Philadelphia. Why? The reason was his service dog was getting antsy a little bit. 

Albert Rizzi was asked to leave his US Airways flight because Doxy, his service dog, became restless. The plane was waiting for time to take off for a long time. Doxy didn't want to sit in a little space by Rizzi's feet.

Passengers said that Rizzi was confronted by a flight attendant who was unwilling to listen or remedy the situation. She made Rizzi and Doxy leave the plane. 

However, all the passengers decided collectively to leave as well. US Airways did provide ground transportation to the destination. 

This is remarkable to see people without disabilities rallying behind someone with one.

Five years ago, many of those passengers would have stayed and even complained. Disability awareness is finally seeping into society and hearts. Thank you.

Public partnerships a year later

Public Partnerships is responsible for the payroll of personal care attendants in Pennsylvania. Through an article today, it was revealed that glitches in the system costs taxpayers millions. It also caused heartache for attendants who some went months without pay.

Last year, the governor, decided to reward Public Partnerships $1 million a month to take over payroll of attendant care for physically disabled and elderly clients. Attendant care allows people to stay at home and receive the care they deserve in their own environment. 

For many attendants, the switch over was a complete nightmare. Paperwork was either lost or filed incorrectly. Phone lines were busy for days on end. Emails were never returned. Pay checks were not sent correctly.

Some attendants had to leave their positions to just get money for their families. This leaves people who are dependent on care stranded. It was a disaster.

One year later, things have improved but no where as good as it was before the take over. In several cases, it can take over a month to get an attendant on the payroll system. So that means that if an attendant quits unexpectedly, the person needing care has to hire someone else and then wait a month for Public Partnerships to file the necessary paperwork. 

Tom Corbett should have left well enough alone!

For more info. http://www.philly.com/philly/news/231989071.html

Wednesday, November 13, 2013

Elf on the shelf, Croods and milkshakes!

Should I get an Elf on the Shelf? Jeff thinks it's a waste of money. I think it could be fun and a nice tradition that Jason can grow up with. 

Laura is, unfortunately, on the brink of not believing in Santa. She's dropped hints and is very logical.  Thank goodness she hasn't asked me directly if there really is a Santa. Last year she saw an Elf on the Shelf in a Target magazine and right away knew it wasn't real because in her words, "mom, why would they sell an elf if it's helping Santa?"  Yep, that's when she was 6!

I like Christmas time and imagination. Laura knows the meaning of Christmas and we celebrate Jesus daily! I think imagination can fit into Christmas. I think it's fun.

Anyway, today was pretty much a typical Wednesday. I taught, cared for Jason and kept the household going. My full of surprises husband came home with Laura, dinner and the Croods.  

I loved the movie! I cried even because it's sentimental. Any stories or movies that has anything to do with families leaving each other makes me cry. Laura is very sweet to console me. The movie was very funny and a good family film.

Now I'm relaxing with a milkshake Jeff made me and watching Jason clap, smile and laugh!

Tuesday, November 12, 2013

Crossing the street

I went grocery shopping today.  The best deal I got was 3 rolls of wrapping paper for $1.50. I did good though and love my coupons.  

At the grocery store, a woman came up to me and said how she sees me and Laura cross the street for the bus stop. She worries I will get hit by a car crossing the street. The cars there are ridiculous and they don't always pay attention. It's scary.

Being in a wheelchair, you are shorter and cars don't always see you. It was nice of her to show concern.

My student came a bit later than planned. It worked out but I did feel a bit annoyed. I do like teaching very much.

We worked a lot on Jason sitting up.  We hope that he will be able to sit on his own soon or he might need a PT evaluation.  He is so on the verge of crawling. I know it is going to be anyday now.

Laura was in a good mood. She's as cute as always.

Monday, November 11, 2013

You won't break me..

My attendant who had been off for a month due to a work related injury was returning today. I felt very excited because we have a good working relationship and I thought all would return to normal.

Jeff had to leave for work early so I had the kids since 6am. They were both wonderful. It's a lot of work but as far as babies go, mine is terrific.

When 8:30 came, I was anticipating my attendant to be at the door. Nothing. I gave it ten more minutes and no one came. My heart sank. I'm not sure how she could do this to me but she did. She never returned my texts or calls.

I'm very fortunate that my sister could help and Grace could come. How this person couldn't inform me she wasn't coming in knowing my situation is just too painful to think about. It's evil and cold.

The thing that hurts the most was that I asked her during the month if she was coming back. She said yes and told me how much she loved the job. On Friday, she excitedly told me she was coming back Monday.

Of course, I worried about if she was safe and okay. But then I saw she read all my messages just fine and just ignored them.

So yes I feel completely betrayed and used. I'm stunned anyone could do that. She could've easily texted me and said she decided to quit. But no she took the mean coward approach.

Now I have another notch to make me stronger. People may want to hurt me, bring me down, lie and ignore me. But what they don't know is my spirit will not break..

 

Sunday, November 10, 2013

Thor

Jeff and I saw the second Thor today. My dad baby sat both kids. He did a great job.

I liked the movie a lot! There was no cursing, sex or extreme violence. It's just a honorable story with humor and romance. I recommend it.

Afterwards, I helped Laura with her homework and preparing for the week ahead. She went to her swim class as I chased a rolling Jason around the living room. He fell asleep for a bit.

I was anxious for Monday. My attendant is due back but her lack of communication makes me nervous. I hope she comes because I'm depending on her.

Friday, November 8, 2013

Reading for young kids

It is time to get ready for a National Young Readers Week. The week is November 11-15! Reading is so important for babies until 110. 

Whether you read the book first and then watch the movie or TV show, or watch the title first and then dive into the book, movies and TV shows based on books bring storybook pages to life for kids. 

Parents can share the timeless classics their parents once read to them with their children, with this curated list of Netflix titles below that are inspired by books. All of the titles below are available to Netflix subscribers, and parents can use these titles to introduce their kids to favorite characters – like that very hungry caterpillar or the girls from The Babysitters-Club. 

National Young Readers Week, November 11 - 15 is a great reason to celebrate these titles. This might work well for an online slide show – we can provide you with images.
 
13 GREAT MOVIES BASED ON KIDS’ BOOKS
 
Big Kids
1. Hugo  
2.Escape to Witch Mountain NEW! 
3.James and the Giant Peach
4.The Baby-Sitters Club
5.Goosebumps
6.A Wrinkle in Time
 
Little Kids:  
1. Charlotte's Web NEW! 
2.The Velveteen Rabbit 
3.The Very Hungry Caterpillar and Other Stories
4.The Magic School Bus
5.The Little Engine That Could 
6.Stuart Little 2
7. Tall Tales: The Man Who Walked Between the Towers, The Snowy Day, I Stink! and Trashy Town
 
Source: Netflix 

Thursday, November 7, 2013

RIP Rocky

My student didn't make it again due to being sick. I went grocery shopping and saved money. At the first grocery store, a  woman I didn't recognize said that she liked my hair cut. That was nice. 

When I went to the second grocery store, a man came up to me and shook my hand. He said God bless you and have a beautiful day. People can be funny sometimes but I'll take extra blessings! 

After putting everything away,  I had a terrible headache and even felt light headed so I took medicine and took it easy. Jason has been a mess with sleeping since the time change. He hardly wants to nap and up by 4:30 in the morning! 

When Laura came home, she immediately entertained Jason. Then she ran downstairs to get her dictionary. She sat in our recliner and looked up all kinds of information. She said she was educating herself. It looked so cute. 

After dinner, we watched Little People, Big World. I knew it was  going to be an emotional one.  Their dog of thirteen years was diagnosed with cancer and the outcome was not optimistic. 

Peacefully he died in the backyard. I also have a dog going on thirteen. She is a tough dog with a lot of spirit.  I dread the day she dies,  but I hope it's peaceful and at home. Lucky and I have been through a lot together.  She is very smart and feisty.  

I, of course,  cried when he died.  Laura comforted me and giggled that I cried.  Any shows that are sad with children and dogs get me everytime! 

Weekend

This week has been interesting but going well. On Saturday, we took the children to the pumpkin fest in Phoenixville. We decided to walk since it was a nice day. The walk always seems closer than what it is.  We made it though and had some fun. They had rolling pumpkins, art stations,  bounce house and free cotton candy. 

As we walked home, I had a craving for Chinese food. So we ordered some after we came home. Jeff and I were tired from dancing the night before. We rested and ate dinner. Then we helped Laura study Spanish. We all crowded in our bed for a show before going to sleep. 

The next day, Jeff had to work from 9-11.  No big deal to handle but then he called asking if he could work until 3!  Ugh.   Laura and I worked together taking care of Jason. We did pretty good. 

Wednesday, November 6, 2013

Election Day

My student didn't come today. He was sick. Today I did some house organization of closets and cleaning my bedroom. I washed the cover on my wheelchair seat since I knew I'd be out of my wheelchair most of the day. 

Jeff and I voted later in the afternoon. I always vote if I'm able. I feel it's an important duty that many people take for granted. When I vote, they assign a person to help me vote. The man was nice and helpful.

I talked to Laura about voting and how to vote. I wanted to take her with me but she didn't want to go. 

Afterwards, I helped Laura with her homework. She earned a 95 on her Spanish test. I was very happy. They don't waste any time though because they already sent home a new list of words and phrases for her December test.

The evening was nice.  Laura and Jason played very sweetly together. She is a very good sister.  Jason spent the day babbling and being loud. He just yells and makes noises. It's so funny when I think about Laura was talking by his age.

Tuesday, November 5, 2013

Skateboarding in a wheelchair

For some, just jumping a curb in a wheelchair can be terrifying. Imagine using your wheelchair like a skateboard. For Jonathan Stark from Penn Hills, Pennsylvania, this is an everyday occurrence. And so is falling since he falls about five to ten times a day!

Jonathan used to be an avid BMX bike rider and heavy into using his skateboard. However, when he was only 18, he had a severe car accident. The accident left him paralyzed from the chest down. 

He went on to graduate high school. Jonathan also never gave up his desire to skateboard. He decided to use his wheelchair like a skateboard. He does all kinds of spins, twists, and moves that many people who use wheelchairs would cringe about.  

Jonathan is now 23 and recently spoke at a film festival about a film of a runner who is blind. The movie is called' "The Straight Line."

Jonathan competes avidly with his wheelchair. It is a growing sport with some competitions worth $10,000 to the winner. Jonathan admits he has broken his ribs, feet and lots of bruises. But it's all worth it to follow his dreams!

The power of a toy

Some people have a difficult time understanding the importance of toys. Toys aren't there just to spoil a child. Children shouldn't get exactly what they want when they want if either. However, toys help children learn,  develop,  and learn. 

Think about your own childhood. Certain toys must come into mind. I had several baby dolls and that certainty helped nurture my wanting to be a mother. Toys often get kids from point A to point B independently,  mentally and emotionally. 

I enjoy seeing children grow with the toy.  The biggest mistake that I did with toys was donating them too quickly as my daughter grew.  She could still play with them but just differently. Her imagination grows and is inspired. 

As we enter the Christmas and holiday season,  pick toys wisely.  Do not underestimate the power of a stuffed bear,  toy car or Lego set.  To you,  it might be a waste of money,  but to a child it's learning,  maturing and comforting. 

Being a boss

My kids are still adjusting to the time change.  Jeff left for work at 5:45 and Jason was up. Then Laura woke up about ten minutes after.  It was actually nice having some alone time. I like the early morning sunshine. It's so much more inviting to wake up to.

After Laura left for school, Jason and I played a lot. He let me write some articles and he fell asleep for a few minutes.  When my attendant came, I had to quick get ready to teach. But unfortunately quick isn't in her vocabulary as nice as she is and I needed to be a boss.

It's not easy being a boss when someone is caring for you. However, if you don't speak up, you get taken advantage of. So it's a hard road sometimes but usually I feel better speaking up than not.

I taught today and did some cleaning too. Jason was cute as ever. He played hard and lots of giggles. When Laura came home, we had to do her homework right away. We were going out to dinner with Jeff's parents.

Jason is getting better and better at being at a restaurant. He will eat what we eat but much much smaller. He's pretty entertained by a few toys and the scenery.  He hasn't grasped the concept of throwing food and toys yet. Laura did that at his age and it wasn't pleasant..

Laura and Jason went right to bed when we came home.  I fell asleep shortly after. 

Monday, November 4, 2013

Turkey crafts

Just about everyday in November,  I will feature a Thanksgiving or Christmas craft,  recipe or activity.  Please join the newsletter so you will always stay informed.  It is simple to join and you will be notified of new articles. 

Thanksgiving craft - Get an orange piece of construction paper and some brown paint.  Paint the palm of your child's hand.  Have them place it on the paper.  You have the body of the turkey and its feathers. Feel free to paint around it and decorate an entire scene.  Be as creative as possible. 

Turkey hand - Outline the child's hand on brown construction paper.  Use different color construction paper for each finger and have them write what they are thankful for on each feather. 

Pine cones turkey - Use a pine cone and put an outline of their hand in the pine cone. The pine cone is the body of the turkey and the hand are its feathers. Glue googly eyes on the turkey. 

November souls

November Catholics remember especially the people who have died before us. As sad as it is, we all will eventually die.  People who are alive can help those in purgatory by praying for their souls. 

Last week we celebrated two important days in the Catholic faith.  They were All Saints Day and All Souls Day.  All saints day is thinking about all the people in Heaven.  All souls day is praying for the souls in purgatory.  Purgatory is the place where souls are purified to enter the kingdom of Heaven. 

This week take some time to remember those who went before us. 

Sunday - O Lord God omnipotent, I beseech Thee by the Precious Blood, which Thy divine Son Jesus shed in the Garden, deliver the souls in purgatory, and especially that one which is the most forsaken of all, and bring it into Thy glory, where it may praise and bless Thee for ever. Amen.

Monday - O Lord God omnipotent, I beseech Thee by the Precious Blood which Thy divine Son Jesus shed in His cruel scourging, deliver the souls in purgatory, and among them all, especially that soul which is nearest to its entrance into Thy glory, that it may soon begin to praise and bless Thee for ever,  Amen. 

Tuesday - O Lord God omnipotent, I beseech Thee by the Precious Blood of Thy divine Son Jesus that was shed in His bitter crowning with thorns, deliver the souls in purgatory, and among them all, particularly that soul which is in the greatest need of our prayers, in order that it may not long be delayed in praising Thee in Thy glory and blessing Thee for ever. Amen.

Wednesday - O Lord God omnipotent, I beseech Thee by the Precious Blood of Thy divine Son Jesus that was shed in the streets of Jerusalem whilst He carried on His sacred shoulders the heavy burden of the Cross, deliver the souls in purgatory and especially that one which is richest in merits in Thy sight, so that, having soon attained the high place in glory to which it is destined, it may praise Thee triumphantly and bless Thee for ever. Amen.

Thursday - O Lord God omnipotent, I beseech Thee by the Precious Body and Blood of Thy divine Son Jesus, which He Himself on the night before His Passion gave as meat and drink to His beloved Apostles and bequeathed to His Holy Church to be the perpetual Sacrifice and life-giving nourishment of His faithful people, deliver the souls in purgatory, but most of all, that soul which was most devoted to this Mystery of infinite love, in order that it may praise Thee therefor, together with Thy divine Son and the Holy Spirit in Thy glory for ever. Amen.

Friday - O Lord God omnipotent, I beseech Thee by the Precious Blood which Jesus Thy divine Son did shed this day upon the tree of the Cross, especially from His sacred Hands and Feet, deliver the souls in purgatory, and particularly that soul for whom I am most bound to pray, in order that I may not be the cause which hinders Thee from admitting it quickly to the possession of Thy glory where it may praise Thee and bless Thee for evermore. Amen.


Saturday - O Lord God omnipotent, I beseech Thee by the Precious Blood which gushed forth from the sacred Side of Thy divine Son Jesus in the presence and to the great sorrow of His most holy Mother, deliver the souls in purgatory and among them all especially that soul which has been most devout to this noble Lady, that it may come quickly into Thy glory, there to praise Thee in her, and her in Thee through all the ages. Amen.

Sunday, November 3, 2013

Just Sunday

Jeff had to leave early this morning for work. I had Laura and Jason. They were excellent.  Laura came into my bedroom full of excitement that Jason said Laura. I didn't hear it, but I'm sure she did.

I helped Laura do her homework and we cleaned a bit. Jason fell asleep when I showered and got ready.  I'll be so happy when Cassie returns so I can wear something other than sweat outfits. They are about the only thing I can put on myself. 

I also can't wait until Cassie comes back so I can teach again. I hear my kids are acting up and they miss me!

Jason had two dirty diapers.  Laura and I tagged teamed changing him. She handled the diaper and I cleaned him. At one point, I spasmed and the wipes flew! Laura became upset but she relaxed. I cleaned them up and life went on. 

My friend and her daughter came for lunch and help me with Jason. We had a great time. Jason didn't want to eat until he saw us all eating too. 

After dinner, Jeff took Laura to her swim class and my mom surprised me with a visit. We had fun. Now we are all relaxing and gearing up for Monday!

Saturday, November 2, 2013

Goalie stick

Jeff and Jason took me to play hockey today. I was given a real goalie hickey stick. Goalie is my best position, I think. I'm horrible at offense. I'm pretty good at defense, but I'm good at blocking those balls coming in the goal.

I really enjoy hearing praises when I do a good job out there. It's always a nice feeling to know that you make your team proud.  I like that Jeff is in it too and enjoys watching me play.

Afterwards we went out to lunch. I picked Mexican because it's Jeff's favorite. I don't like it so much but can usually find something that I like. I had shrimp fajitas and they were actually quote delicious.

On the way home, we got gas and baby formula.  We looked at the new place my sister is moving into and then returned home.  We were ready for some relaxation. 



Monday, October 21, 2013

Getting my wheelchair

I didn't get my first motorized wheelchair until I was 7. My parents debated back and forth on if I could handle driving it. My mother wanted me to have my independence. My dad worried if I could drive it.

Low and behold, I finally had my motorized chair! To me, I saw opportunity and fun. Sure I had to practice a lot but I caught on pretty quickly. Kids with disabilities now have an amazing variety of chairs compared to the early 1980s. Back then, choices were scarce and wheelchairs were just ugly! 

I've been in the middle of getting a new wheelchair Hell. I was evaluated back in April and here we are in October and I'm still waiting! Today I just got word that it finally has been submitted to the insurance company. Praise The Lord!  

Getting my last wheelchair was so easy compared to this. It makes no sense that someone who cannot walk all of their life or even a significant part should have to jump through so many hoops. A wheelchair isn't just a chair. It's an extension of who we are. We need it to perform daily living tasks, go to work, go shop, go places and live life normally.

Sunday, October 20, 2013

Teamwork to survive

Anyone that needs an attendant to help with everyday life knows that when they are out, life isn't very fun. Mine has been out for three weeks.  She slipped in my bathroom and hurt her knee and ankle very bad.  I feel terrible that happened to her. Even though it's not my fault, since it's at my house, I can't help but feel responsible in some way.

I am fortunate enough to have someone local who can come in as needed. She's a wonderful back up but  unfortunately not meant to be a full time day person. But thank God she's available and can at least be here to do some of the essential stuff..

Jeff and I are very fortunate to get a long as well as we do. If not, these last three weeks would have been very rough.  We have some stressful moments.  He's been doing an awesome job on taking care of the house, Jason and me.  Plus he's balancing his own jobs and his own stuff.

Teamwork is so important in a marriage but especially with children and a significant disability. Keeping things moving smoothly and efficiently helps reduce stress.

Jason is 8 months

Jason is 8 months old! He still continues to amaze me. His smile lights up the sky and his laugh melts your heart.  There is no way that you can walk away from Jason and still be in a bad mood.

He is growing into a big boy.  Most likely he is about 20 pounds right now.  He's beginning to fit into 12 month old clothes.  It's nice that he's so healthy in growing and weight.

Jason is working hard on beginning to crawl.  He lays on his belly and pushes his upper body up.  He just started to bend his knees.  He can move backwards and in a circle.  I don't think it'll be long at all when he's crawling.

He doesn't have a big interest in sitting up on his own.  We keep practicing and one day, I know he will. He's just on his own time.

Jason has learned to clap his hands.  It's so adorable to watch him clap.  He gets so proud of himself too. He also lives peek a boo and playing with his big sister.

Jason knows that I can't do everything daddy can.  He's fine with that.  When I'm in charge for a few hours, he's ok not being in the Jumperoo or exersaucer. He is very content playing on the floor.  When he's tired, he will just fall asleep peacefully with his soft blanket.

He loves his Jumperoo though and exersaucer. They are his favorite!






October is anti bullying month

October is dedicated to anti-bullying month. But it really should be a whole year celebration. Bullying does no good to anyone. 

Bullying starts off as innocent. Perhaps that person is trying to tease but it comes out wrong. Before too long, the bully feels powerful in a weird way and it continues. The person being bullied feels like the size of a pea and broken inside.

If you do not want your child to be a bully, think about how you talk to them and treat them. Do you make fun of them or tear them down? When they feel bad about themselves, they are more likely to go to school and make someone else feel terrible. The cycle continues.

Talk to children as soon as they begin pre school.  Keep the conversation going all the way until they graduate high school. Be an example on how to treat others. Your children learn from you daily.

Monday, October 14, 2013

The rain proof poncho from Buck and Buck

How can a poncho give a wheelchair user independence? All season waterproof poncho from Buck and Buck has given me much independence to enjoy the outside no matter the weather. It keeps someone both warm and dry!

On a typical Thursday morning, I transfer into my motorized wheelchair to walk my daughter to the school bus. I saw it was rather dark outside so I asked her if it was raining and she replied yes. Normally, this would mean that I would either get soaking wet or stand at my door as she crosses a busy street alone. However, today I could try my All season weatherproof poncho.

I was apprehensive about putting it on by myself but once I pulled the zipper down, I didn't have much of a problem. I have athetoid cerebral palsy so my arms don't always do what I ask. It wasn't hard even one handed.

I noticed immediately that it covered my whole lap and leg area. As many people that use wheelchairs know, when it rains or snows our lap and legs become soaked. Not with the poncho made from Buck and Buck. I could also cover my joystick box so it wouldn't get wet and my driving arm would stay dry. 

The polar fleece lining of the poncho is not only soft but warm. When I went outside in the rain and 40 degree weather, I felt comfortable. And that says a lot because I'm normally cold. 

My daughter helped me with the hood although I'm quite certain that I could've done it myself.  I'm not a hood or hat person but this hood is comfortable and doesn't blind you. It kept my head nice and dry.

The rain didn't soak into the poncho. It simply beaded up and pulled away from it. I was very impressed.  My whole body stayed warm and no rain anywhere. 

If I had to give the All season waterproof poncho some criticism, it would be this. I missed not having a front pocket so I could store my cellphone. A pocket is always nice to have especially out in the weather elements. 

I'm so happy to have this poncho and not have to worry about a dangerous situation for my children anymore.  Thank you for giving me the freedom to conquer any weather. 

For more information - http://www.buckandbuck.com/womens-clothing/sweaters-jackets-shawls/jackets-and-coats/rainproof-poncho.html

Saturday, October 12, 2013

Father creates wheelchair

Anything is possible if your mind is set to it.  Many two year olds are running around exploring the world. However, Alejandro has spinal muscular atrophy making it very hard to move. His father used his hacking skills to invent a motorized wheelchair for his son.

Alejandro's parents tried to get medical insurance to purchase him a motorized wheelchair. The insurance company denied them for five years. So his dad took creativity and ingenuity in his own hands.

He bought a $800 motorized chair on eBay.  Then the question was how would Alejandro be able to sit and drive his chair? His father adapted a seat for his son. 

He then took foot pedals and rigged them up to the wheelchair. Alejandro is able to move his feet. These movements help control the motorized wheelchair so he could steer where he wants to go.

When one door shuts, sometimes you need to open another door yourself!  Follow Alejandro's family on their blog.
http://www.hackingsma.com/

Wednesday, October 9, 2013

Tom hanks

Tom Hanks has been diagnosed with Type II diabetes.  He talked about it on the "David Letterman Show" last night.  Diabetes is a disease that affects how blood sugar is managed in the body.

When someone has Type II diabetes it means that your fat, liver and muscle cells do not respond well to insulin.  Insulin is a special hormone that moves blood sugar to cells so they can store energy. Cells need energy to thrive.

When blood sugar can't move into the cells, there is an extra amount of sugar in the blood which makes someone experience hyperglycemia. This can result in shock,fainting, seizures and other things to the body.

Often people who are overweight are diagnosed with Type II diabetes. After being diagnosed, one must learn how to maintain blood sugars.  They need to learn when to eat, how to test blood sugar, how to buy diabetes supplies, take medicine and take better care of their body.

Tuesday, October 8, 2013

Kids set goals month

Children need goals too and during Kids Goal Setting week, what better time to start?  Some might look at kids and believe that they don't need goals. However, goals give them hope for the future. 

What type of goals are good for kids? Well, you don't want to overwhelm them so customize the goals to each child. Explain to them why goals are important and plan something special when they meet them. 

Example goals are:

1. Complete all homework before watching any television. 
2. Making their bed in the morning.
3. Achieving a specific grade in a certain subject. 
4. Reaching a level in sports or just joining a sport activity. 

Make the goals obtainable in a reasonable amount of time. Celebrate when the goal is reached and encourage them to set another goal. 

Monday, October 7, 2013

Friday fun

 Our weekend turned into something very fun. I consider the weekend to be Friday and Saturday because I don't have any attendants or work. Sunday I teach and clean. 

Laura had off Friday due to parent conferences. Jeff had to go to handle some business activities so I had both kids on my own. We did perfectly fine. Laura is a big help but Jason is an easygoing guy. 

I like days like these. They might be a bit more difficult but it's fun just spending quality time together without someone here. Laura always loved these days ever since she was two! I think Jason will as well. We might not always do it by the book but they are clean, fed and happy.  Not to mention most importantly- loved!

We played, did homework and watched a little bit of television. We ate lunch after Jeff returned. It was a late lunch but that's ok.  Jeff took Laura to karate. A lot of people don't go to karate when school is off, but I pay good money for it so I would like her to attend. 

Laura has been off and on with karate. She actually wanted to quit.  I told her that I wanted her to stick with it until at least the end of October. Laura is really good at karate and it would be a shame for her to quit.  I talked to her karate teacher and he gave her a pep talk. Then on Friday she was praised a lot for her moves. They said she would be able to be on the tournament team if she kept up the good work.

That night was the final First Friday event in Phoenixville until May.  Laura didn't want to go so she hung out with my dad. Jeff and I took Jason. The band was great. They were much better than other bands that play usually. I danced a lot.  Jason enjoyed it too with his little feet kicking.    The weather was very warm. It felt like a spring night other than a fall night.

It was a great start to the weekend! 

Face your fears day

October 8 is face your fears day! Facing your fears is not easy even if it sounds trivial. Fears hold us back from our true identity and new life experiences. 

Perhaps you are not being honest with someone, procrastinating doing a task, want to do something but are not or not facing reality. On face your fears day, decide to make a change. Look fear in the eye and conquer. 

More times than not, once a fear is conquered, we wonder why we were ever afraid in the first place.  As long as you are not hurting yourself or anyone else, face your fear and you will feel better you did! 

When you do something that you were afraid of doing, you will feel accomplished and proud. Then the next time you do it, it us not as hard. Everyone has a fear of something.  You are not alone, but it's how we choose to deal with it that makes the difference.

Laura's report card

Laura's school uses the trimester system. I haven't figured it all out yet but Thursday she had her SLC. SLC means student lead conference. Unlike usual parent teacher conferences, the student attends and participates.

 

Laura's teacher said many good things about her. She said that she can rely on Laura to do the right thing. I felt very proud to hear that. The only negative thing I heard was from her gym teacher who said Laura loses focus when she plays with her best friend.

 

After the meeting, we went to the hair cuttery where I had my bangs trimmed, stopped in the Goodwill and ran into Giant to stock up on Laura's favorite yogurt. Then we celebrated at Red Robin for lunch.

 

The day wasn't quite over yet. We took Laura to get her hair trimmed at Sweet and Sassy. I had a groupon there then headed to Toys R Us so Laura could return something and use gift cards.

 

I also got Jason a car that rattles and stacking cups. Laura got a game for her Leapster and a bracelet making thing.

 

The rest of the day we relaxed!

 

Thursday, October 3, 2013

Jason is seven months

Jason turned seven months old. He is as precious as always and honestly a very good baby. He now weighs 19 pounds!  He wears 9 month old clothes.

Jason is a very happy baby. He smiles easily and has a fantastic sense of humor. I get a kick out of when he sees me in my wheelchair opposed to being on the floor. Jason gives me a look of disbelief followed by a light the room up smile. 

He now loves his Jumperoo and exersaucer. I was able to get the exersaucer at a yard sale for $5! It's in excellent condition and retails $80. We purchased the Jumperoo at the Just Between Friends Sale for $30. Normally it's $90.

It's so cute to see him jumping and having the time of his life. He also enjoys holding toys and making noise. He still likes his soft toys and blankets too.

Jason can sit by himself for a few minutes but he doesn't do it consistently. We are working on it. He eats three meals a day of baby food. He likes the Gerber brand the best. Anything else he pretty much refuses.

Jason is also learning how to clap and give high fives. Everyone that meets him loves his smile and twinkle in the eye. When he is happy or excited, his feet start kicking away.  Jason hardly cries unless he is hungry, tired or hurt.  He is an amazing little boy.






Wednesday, October 2, 2013

Cerebral palsy day

October 2 is World Cerebral Palsy day. It's a day spent where people all over the world think of innovative ways to help and encourage those with cerebral palsy. People with cerebral palsy are all unique in how the disability affects them. Just a hand might be affected or the whole body.

Cerebral palsy is a difficult disability to hide. Speech, motor skills, walking and moving can be affected. Unfortunately, it's commonly misunderstood as mental retardation and some people actually think people with cerebral palsy move how they move on purpose. Statistically speaking, most people with cerebral palsy are not mentally retarded. And the body movements cannot be helped.

What does help someone with cerebral palsy is understanding and common sense. Stop assuming they are mentally retarded or deaf. Chances are you will look silly to act like that. Do your best to be patient when they speak and listen to them. Never tell someone with cerebral palsy to be still. Believe it or not, they would love to be but the body won't allow it.

Tuesday, October 1, 2013

Breaking Bad and Dexter

Jeff corrupted me. Yes, I watched the show Dexter and Breaking Bad. Both of these are not my typical television shows. However, they are both so addicting.

I was pregnant when I first started watching both too. I had to look away at the disgusting parts. I remember clearly one episode of Breaking Bad when I actually threw up in the living room because of one particular scene.

Jeff and I bond a lot over series shows. We enjoy watching them at night after the children are in bed. We also relax watching them as Jason naps and Laura's visiting family on Saturday afternoons.

I always preferred Dexter over Breaking Bad but I must admit that the Dexter final season and finale were huge disappointments. Breaking Bad had the best ending and tied up loose endings. In my opinion, I think Dexter went down hill when Deb found out his true identity. It wasn't the same mysterious show after that.

Anyway, I have many fond memories of watching both with my husband. I'm also very happy Homeland,Greys Anatomy,Body of Proof and Ironside are on. Walking Dead comes back on soon too. I'm not quite a fan of that but it is interesting. It gives me nightmares!

 

Hire someone with a disability

October begins National Disability Employment Month. Congress has set October to be dedicated for awareness for employers to hire those with disabilities in 1988. This was to replace Employ the Physically Handicapped Week made in 1962.


Currently it is hard for anyone to obtain a job. When a physical disability is added into the mix, employment gets even more challenging. However, fear is really the only reason why employers hold back in hiring those with disabilities.


Employers fear that people with disabilities won't be able to handle the position, afraid customers might shy away from the person or liabilities will increase. Fear should not get in the way of hiring great employees.


Employers need to hire people with disabilities. Statistically speaking, those with disabilities are better workers. They know their disability better than anyone and can adapt to the job. If customers seriously have a problem with them due to the disability, then do you really want their business anyway?


If you are an employer and are hiring, try to look at a persons credentials and look beyond the disability. You might just be hiring the best worker out there!

Monday, September 30, 2013

Family eat together, eat better October

Eat better, eat together month is October. October is the best time to remember how important it is to eat together and eat healthy. The school routine is in place and the chill is in the air to bring us inside.


When people eat together instantly our social esteem raises. Not many of us like to eat alone. Children thrive on family time even if they refuse to admit to it. Turn the television off and turn on the listening ears.


Statistics say that eating together improves a child's grades and self esteem. They might just talk automatically without being prodded about their day. Conversation is always good between family members.


Healthy eating is always a good thing. It isn't always the easiest or cheapest , however, most beneficial for the health of the family. Soda is not good for anyone. Children need milk, fruit, vegetables and protein.


Have a good month and eat better!

Sunday, September 29, 2013

Laura turns 7!

Last weekend was so much fun. My daughter turned 7 years old.  Seven years surely fly by. My pregnancy with Laura wasn't so smooth. I had morning sickness all nine months, had pain all over and had a mysterious pain in my right arm. That pain landed me into the hospital with a morphine drip because I hardly slept for 72 hours.

Like Jason, Laura was early. She was 3 weeks early born at 2:58am. She was tiny yet perfect. Laura is still tiny, and to me, perfect.

On Saturday, we had a small family party.  We had a great time. Jeff and I throw pretty good parties, I must admit. It's difficult for me to watch Jeff do all the physical stuff involved but I do the shopping, inviting, cleaning etc. Accept what you can do.

On Sunday, we had her friend party at Aerial's Gymnastics. She asked me for a party there ever since her older cousin went to a party there and told her about it. The unfortunate part was we couldn't invite her whole class. I always feel bad about it because I wasn't ever invited to a birthday party and know exactly how that feels. Terrible!

Laura had a blast though. Her smile said it all and everyone had a great time. They have people that do the parties for you. You just bring the cake. I'd recommend them to anyone.






What physical therapists and others who mean well should know

I was reminded tonight how frustrating people can be at times. My husband was trying to have me feed myself baked beans with a spoon. As helpful as I know he was trying to be, it was  annoying. In his defense, I know he meant well because he encouraged me to try the iphone, ipad and pull myself onto the toilet. All these things I thought were also impossible, were not.

However, I knew I could not feed myself with a spoon.

Sometimes I think people need to listen to someone before pushing them to do the impossible. Otherwise their well meaning words sound hurtful and discouraging.

I was reminded how I felt when an OT forced me into hours of trying to button a shirt. She refused to listen or understand my point of view. I realize I have severe CP and accomplished more than many thought but I do have limitations.

I hope physical and occupational therapists would understand the line of a healthy challenge to an annoying nagging. It makes the person feel inadequate and defeated. Instead one should ask what they would like to work on and encourage positively.

In the end, I was fed my baked beans by my handsome husband...next challenge, please!

Tuesday, September 24, 2013

Disney changed rules for disabilities

Disney World has changed its rules about people with disabilities. In the parks, people with physical disabilities were allowed to go in front of the line or through another entrance. Unfortunately, too many took advantage of the system and they dropped it altogether.

What many people do not realize is that waiting in line with a wheelchair or mobility device is very hard. People with a legitimate disability are not out  to scam the system or have special rights. It’s just nice to have a place to make a vacation a wee bit easier to handle.

But I guess that is too much to ask for.

Some people wanted to fake having a disability to get ahead. It is a real shame that this made them feel great. Then there are  the people with disabilities who thought it would be cool to scam the system to get money by being ‘tour guides.’

Thank you for making life more challenging for those with disabilities who just want to have a vacation without the stress of crowds and burning in our wheelchairs as we wait in line. Also in line we get strangers to stare at us, bump into us and often make fun of us.

Disney is no longer the happiest place on Earth...

Friday, September 20, 2013

'Twas the night before seven

'Twas the night before turning seven and lots of excitement through the house. Tomorrow Laura turns seven and I can't believe what an amazing young lady she has become. Her birthday is always a little emotional for me. I'm sure Jason's will be too.

Laura's father died when she was six months old. He loved Laura more than anything. I remember clearly him holding her moments after she was born. He rocked her and sang," you will be in my heart" from the movie Tarzan. I thank him for helping create her. 

Laura's sixth year has been great. She has learned how to read, became a yellow belt in karate, became a terrific big sister, has many friends and is one of the smartest people I know.  Laura has the biggest heart and so thoughtful. 

Today was the beginning of her birthday weekend. Cassie helped me bake cupcakes for her class. She was able to share them and they sang happy birthday to her. Then her school had grandparents day. Laura was blessed enough to have three come. My heart broke when I heard some didn't have any come. But Laura's helped them not feel left out. 

My dad was able to hang out at her class and take her to karate.  My mom watched her do karate. Then everyone hung out at our house, my dad took her to dinner then they hung out a bit longer. 

Laura's book order also came in and that was  also a nice surprise because that was part of her birthday present.  Now in the early hours, my little girl turns 7 at 2:58am.  Thank you God for giving her to me to raise on Earth!


Thursday, September 19, 2013

Candy crush

I enjoy Candy Crush. It's actually my nighttime relaxation activity. Most people enjoy watching tv but I will grab my iPad and try to beat another level. 

I know I'm not the only one!  Jeff and I saw people at festivals playing the game. Jeff has seen people at the gym playing. The game spans across many generations.  I've seen children up to senior citizens play. 

I happen to think it's a good thing. However, if you are going into debt over it or spending way too much time on it, there might be a problem!  But if not, I think it's better on the brain than watching television. 

I like that you need to strategize moves,think ahead, and try to obtain the most points.  There is nothing more rewarding in the game than beating a level. The most frustrating is when you have one more move and no lives left!

So play in moderation but don't feel guilty because you're exercising the mind!

Thursday, September 12, 2013

School morning routine

Laura is back in school and everything seems to be going very well. She enjoys her teacher and her best friend is in her class. The first day was hard for me to let her go. In fact, I had tears for the first three days when the school bus pulled away. Once in a while, I still feel tears build up. 

We have a good morning routine. I get up about 8 minutes before Laura.  This way I can use the bathroom and start the shower for her. She showers, gets ready and we talk a bit.  

I have sneaker sandals that I can put on myself. The night before, Jeff puts my wheelchair in front of the couch. So I get on the couch and scoot to my seat. Laura fastens my seatbelt. 

I hung on the refrigerator a list of things she needs to do before and after school. This helps us not to forget anything. We normally have ten extra minutes that I built in for emergencies, wardrobe malfunctions or just a slow moving day.  Usually we chat or she plays on the iPad. I sneak in extra hugs or kisses.  

I often hear stories about school that just pop up out of the blue.  I enjoy hearing about life from a six year-old perspective. 



Sunday, September 8, 2013

Public partnerships need to care more

In addition to the sicknesses, I have been dealing with some other issues. I hired a wonderful new attendant and she started mid August. She has had horrible luck medically. She called off twice. And then couldn't make it in at all this week. Now normally I'd obviously question if I had made a mistake in hiring her. 

However, all her issues are legit. She will be back on Sunday and hopefully good from there on out. We made it work but I'm looking forward to her return. My back up has been wonderful and even changed her schedule to come help me. 

Jeff also helped more in the morning and did more housework to help. I am looking forward to some normalcy though. 

The other stressful thing is Public Partnerships pay all attendants in Pennsylvania. They are the most difficult company that I ever dealt with.  My attendant filled out all the proper paperwork etc and should have been fine to work by mid August.  To my dismay, they refuse to pay her for 47 hours because they determined the date.

So now what? My caseworker can't get anywhere either. I'm going to contact my senator but have my doubts he will help. It's absolutely absurd. 

She is staying with me hopefully for awhile. I'll let you know how it turns out, but it looks like I will need to pay her out of pocket. 

Friday, September 6, 2013

Poor sick baby

The last two weeks have been a bit crazier than usual. Jeff caught a cold and shortly after so did Jason. Nothing worse than a sick child - especially a baby. 

We didn't rush to the doctor immediately but when he just sounded more and more congested, we decided it was time. The doctor diagnosed him as having allergies. It made sense to me because Laura has allergies ever since she was a baby.

When babies are premature, they are more likely to have allergies and respiratory issues. They gave him Singular to drink in his bottles. He did improve slightly but then he went downhill pretty fast. 

His eyes were red and goopy. Jason sounded very congested. We just started him on baby food and he refused to eat. So back to the doctor we go..

It's very sad to see your baby sick.  They whimper and try to smile but just can't. Jeff held Jason more and tried to keep him comfortable. In the meantime, I got sick as well and had a fever. I normally get whatever comes along.

So Jason and I had joint appointments. Jason looked so sad with his red eyes. It broke our hearts. He was diagnosed with a sinus infection and ear infection! The doctor put him on amoxicillin the antibiotic. Then he looked at me and said I had a sinus infection and I was put on antibiotics. 

Jason started feeling better the next day. I'm still bouncing back but better. Luckily, Laura has been okay.  We have been giving her the normal allergy medicine so maybe it kept it away.

Jason is now back to smiling, laughing,eating and being adorable as ever!



Thursday, September 5, 2013

Fall goals

The end of summer brings about new goals. Having a baby, a first grader, pets, an organized house, husband, working for the Examiner, being a social media person for the Pennsbury Inn and a first grade Catholic class I realize how valuable time is. I want to utilize my time well.

My goals until December are to take one hour a day for writing. This way it won't feel crammed in and stress me out. I love working so please don't get me wrong. But I feel a steady schedule will definitely help!

What are your goals this fall?

My birthday

Jeff made my birthday very special this year. The morning started off rough though. My attendant texted me right after I woke up to tell me she couldn't make it in due to a medical issue. Then on my way back from taking Laura to the bus, I cut open my hand by opening the gate. 

My morning improved. Jeff came out with Jason and we ate breakfast together. One of my closest friends spent the afternoon together!  She moved to Louisiana and I missed her so much. It was the first time she met Jason. Of course she fell in love! 

She helped me take Jason to the doctor. He had been coughing for a few days and it was time to get him looked at. At the time, the doctor diagnosed him with allergies. 

Afterwards, I took her to Wendy`s so we could eat lunch. If you have never tried the cheeseburger on a pretzel roll,  you need to. It's delicious!  Then we picked up Laura at school. She was absolutely surprised to see Tabitha and happy. 

We all sat on my deck and talked. Laura did her homework and Jeff said he ordered dinner. I didn't expect anything else.  Then I saw my nephew walk in,  my sister, mom, dad and Jeff's parents.  He planned the whole thing and I had no idea! 

Jeff ordered my favorite cheesesteak. He also got me a delicious chocolate cake. We all had a lot of fun and I got some wonderful gifts.

Here is to year 38!

Tuesday, September 3, 2013

What teachers need to know about disabilities

For many students with disabilities inclusion is the norm. I wasn't included until the fifth grade because back in the early eighties, inclusion was unheard of. Everyone would say that I'm a trail blazer. I didn't understand what that really meant then but now I do. 

When I was first included, teachers wanted nothing to do with me. I sat in the very back of the class by myself. I didn't feel like I was part of the class but obviously there to prove something. 

I would like teachers to realize that children with disabilities are still children. Look beyond the wheelchair, equipment, speech problems, spasms and whatever else be the disability. Find the child eager to learn, have fun, and belong.

Let go of preconceived notions about the child. Let the child teach you who they are. Include them in your class, accept them and challenge them.  

Some of my best teachers found the real Jessica and challenged me to do the best I could.  Children with disabilities need to be ready because adulthood with a disability is completely different.   Finding a job, managing your care, and being independent is harder with a disability. 

The bottom line is if you are teaching children with disabilities treat them as you would any student. Don't be afraid to challenge them so they are prepared for the rest of their lives. 

Monday, August 26, 2013

Jeff and Jessica

Jeff and I are trying to avoid mistakes that so many couples make and relationship experts warn about- love your children but don't forget to nurture your relationship as a couple. It sounds so simple to say but much harder than you think. 

Laura goes to bed at 8 but Jason is between 9-9:30.  So by the time he's in bed, our alone time is limited because I need to get up Laura for the bus and the morning shift of Jason. During the day I have an attendant until 3 and then it's time for Jeff to get Laura. Then we both take care of them until bed.

The lack of our time was making us cranky with each other. So we have friends that help us out by watching Jason so we can see a movie and recently one night a month to go out dancing. 

Last Thursday we went to see The Butler. Jeff and I laughed because we were surrounded by the ladies of the Red Hat Society! We were definitely the minority. But we had a blast because they were all making comments and it added to the movie. 

The next night we went dancing.  As you know from previous posts, going out dancing is a love/hate relationship for me. I have my own insecurities and sometimes people just treat me very odd. I admit I've had a  pretty negative attitude towards going dancing ever since Jason has been born. 

However, dancing is something Jeff really enjoys and I do too! So we went to one place but the band was horrible.  We drove down the road to another place and the band was so much better. 

But as soon as I entered the dance floor the crazy people surrounded me. A guy in a cowboy hat, an unusually tall man and a middle aged woman surrounded my chair. At first, I refused to dance with anyone and tried to dance with my husband. However cowboy kept wanting to dance so instead of ruining the night, I agreed and danced with him for a minute. He asked if I'd dance again and I simply said, "maybe. "

The rest of the night was perfect. We danced together like when we were dating. In the back of my mind I thought about getting up early with Jason but it was worth it.  Jeff let me sleep. I relieved him around 9 and then I napped a bit in the afternoon. All was good. 





How society views people who have cerebral palsy

Have you ever had a day when you forget that you have cerebral palsy? You simply wake up, do your normal routine and don't even think ab...