Tuesday, December 31, 2013
Monday, December 30, 2013
Sunday, December 15, 2013
Saturday, December 14, 2013
After teaching, Jason and I went with Jeff to pick up Laura and headed to the mall. We wanted to avoid crowds, and we did. Both kids fell asleep on the way.
When we arrived, we had Laura change into her Christmas dress. She looked great! Her grandmother got it for her.
When in the bathroom getting Laura ready, I received a call that my new power chair could be delivered on Tuesday! It’s hard to describe how I felt other than like I was 5 and it’s Christmas Eve.
When we arrived to the Santa area, he came to me. I believe he thought I was there to see him. I was polite and how can you not be nice to Santa?
At first, Jason was cool with Santa. He was into the ball of the on his hat. But then he took a better look and realized another person was holding him. He started crying but we tried the best to keep him happy and snap a picture!
Friday, December 13, 2013
Friday, November 29, 2013
Thursday, November 21, 2013
Tuesday, November 19, 2013
Sunday, November 17, 2013
Friday, November 15, 2013
Wednesday, November 13, 2013
Tuesday, November 12, 2013
Monday, November 11, 2013
My attendant who had been off for a month due to a work related injury was returning today. I felt very excited because we have a good working relationship and I thought all would return to normal.
Jeff had to leave for work early so I had the kids since 6am. They were both wonderful. It's a lot of work but as far as babies go, mine is terrific.
When 8:30 came, I was anticipating my attendant to be at the door. Nothing. I gave it ten more minutes and no one came. My heart sank. I'm not sure how she could do this to me but she did. She never returned my texts or calls.
I'm very fortunate that my sister could help and Grace could come. How this person couldn't inform me she wasn't coming in knowing my situation is just too painful to think about. It's evil and cold.
The thing that hurts the most was that I asked her during the month if she was coming back. She said yes and told me how much she loved the job. On Friday, she excitedly told me she was coming back Monday.
Of course, I worried about if she was safe and okay. But then I saw she read all my messages just fine and just ignored them.
So yes I feel completely betrayed and used. I'm stunned anyone could do that. She could've easily texted me and said she decided to quit. But no she took the mean coward approach.
Now I have another notch to make me stronger. People may want to hurt me, bring me down, lie and ignore me. But what they don't know is my spirit will not break..
Sunday, November 10, 2013
Jeff and I saw the second Thor today. My dad baby sat both kids. He did a great job.
I liked the movie a lot! There was no cursing, sex or extreme violence. It's just a honorable story with humor and romance. I recommend it.
Afterwards, I helped Laura with her homework and preparing for the week ahead. She went to her swim class as I chased a rolling Jason around the living room. He fell asleep for a bit.
I was anxious for Monday. My attendant is due back but her lack of communication makes me nervous. I hope she comes because I'm depending on her.
Friday, November 8, 2013
Thursday, November 7, 2013
Wednesday, November 6, 2013
Tuesday, November 5, 2013
Monday, November 4, 2013
Sunday, November 3, 2013
Saturday, November 2, 2013
Monday, October 21, 2013
Sunday, October 20, 2013
Monday, October 14, 2013
Saturday, October 12, 2013
Wednesday, October 9, 2013
Tuesday, October 8, 2013
Monday, October 7, 2013
Laura's school uses the trimester system. I haven't figured it all out yet but Thursday she had her SLC. SLC means student lead conference. Unlike usual parent teacher conferences, the student attends and participates.
Laura's teacher said many good things about her. She said that she can rely on Laura to do the right thing. I felt very proud to hear that. The only negative thing I heard was from her gym teacher who said Laura loses focus when she plays with her best friend.
After the meeting, we went to the hair cuttery where I had my bangs trimmed, stopped in the Goodwill and ran into Giant to stock up on Laura's favorite yogurt. Then we celebrated at Red Robin for lunch.
The day wasn't quite over yet. We took Laura to get her hair trimmed at Sweet and Sassy. I had a groupon there then headed to Toys R Us so Laura could return something and use gift cards.
I also got Jason a car that rattles and stacking cups. Laura got a game for her Leapster and a bracelet making thing.
The rest of the day we relaxed!
Thursday, October 3, 2013
Wednesday, October 2, 2013
Tuesday, October 1, 2013
Jeff corrupted me. Yes, I watched the show Dexter and Breaking Bad. Both of these are not my typical television shows. However, they are both so addicting.
I was pregnant when I first started watching both too. I had to look away at the disgusting parts. I remember clearly one episode of Breaking Bad when I actually threw up in the living room because of one particular scene.
Jeff and I bond a lot over series shows. We enjoy watching them at night after the children are in bed. We also relax watching them as Jason naps and Laura's visiting family on Saturday afternoons.
I always preferred Dexter over Breaking Bad but I must admit that the Dexter final season and finale were huge disappointments. Breaking Bad had the best ending and tied up loose endings. In my opinion, I think Dexter went down hill when Deb found out his true identity. It wasn't the same mysterious show after that.
Anyway, I have many fond memories of watching both with my husband. I'm also very happy Homeland,Greys Anatomy,Body of Proof and Ironside are on. Walking Dead comes back on soon too. I'm not quite a fan of that but it is interesting. It gives me nightmares!
October begins National Disability Employment Month. Congress has set October to be dedicated for awareness for employers to hire those with disabilities in 1988. This was to replace Employ the Physically Handicapped Week made in 1962.
Currently it is hard for anyone to obtain a job. When a physical disability is added into the mix, employment gets even more challenging. However, fear is really the only reason why employers hold back in hiring those with disabilities.
Employers fear that people with disabilities won't be able to handle the position, afraid customers might shy away from the person or liabilities will increase. Fear should not get in the way of hiring great employees.
Employers need to hire people with disabilities. Statistically speaking, those with disabilities are better workers. They know their disability better than anyone and can adapt to the job. If customers seriously have a problem with them due to the disability, then do you really want their business anyway?
If you are an employer and are hiring, try to look at a persons credentials and look beyond the disability. You might just be hiring the best worker out there!
Monday, September 30, 2013
Eat better, eat together month is October. October is the best time to remember how important it is to eat together and eat healthy. The school routine is in place and the chill is in the air to bring us inside.
When people eat together instantly our social esteem raises. Not many of us like to eat alone. Children thrive on family time even if they refuse to admit to it. Turn the television off and turn on the listening ears.
Statistics say that eating together improves a child's grades and self esteem. They might just talk automatically without being prodded about their day. Conversation is always good between family members.
Healthy eating is always a good thing. It isn't always the easiest or cheapest , however, most beneficial for the health of the family. Soda is not good for anyone. Children need milk, fruit, vegetables and protein.
Have a good month and eat better!
Sunday, September 29, 2013
Like Jason, Laura was early. She was 3 weeks early born at 2:58am. She was tiny yet perfect. Laura is still tiny, and to me, perfect.
On Saturday, we had a small family party. We had a great time. Jeff and I throw pretty good parties, I must admit. It's difficult for me to watch Jeff do all the physical stuff involved but I do the shopping, inviting, cleaning etc. Accept what you can do.
On Sunday, we had her friend party at Aerial's Gymnastics. She asked me for a party there ever since her older cousin went to a party there and told her about it. The unfortunate part was we couldn't invite her whole class. I always feel bad about it because I wasn't ever invited to a birthday party and know exactly how that feels. Terrible!
Laura had a blast though. Her smile said it all and everyone had a great time. They have people that do the parties for you. You just bring the cake. I'd recommend them to anyone.
However, I knew I could not feed myself with a spoon.
Sometimes I think people need to listen to someone before pushing them to do the impossible. Otherwise their well meaning words sound hurtful and discouraging.
I was reminded how I felt when an OT forced me into hours of trying to button a shirt. She refused to listen or understand my point of view. I realize I have severe CP and accomplished more than many thought but I do have limitations.
I hope physical and occupational therapists would understand the line of a healthy challenge to an annoying nagging. It makes the person feel inadequate and defeated. Instead one should ask what they would like to work on and encourage positively.
In the end, I was fed my baked beans by my handsome husband...next challenge, please!
Tuesday, September 24, 2013
What many people do not realize is that waiting in line with a wheelchair or mobility device is very hard. People with a legitimate disability are not out to scam the system or have special rights. It’s just nice to have a place to make a vacation a wee bit easier to handle.
But I guess that is too much to ask for.
Some people wanted to fake having a disability to get ahead. It is a real shame that this made them feel great. Then there are the people with disabilities who thought it would be cool to scam the system to get money by being ‘tour guides.’
Thank you for making life more challenging for those with disabilities who just want to have a vacation without the stress of crowds and burning in our wheelchairs as we wait in line. Also in line we get strangers to stare at us, bump into us and often make fun of us.
Disney is no longer the happiest place on Earth...
Friday, September 20, 2013
Thursday, September 19, 2013
Thursday, September 12, 2013
Sunday, September 8, 2013
Friday, September 6, 2013
Thursday, September 5, 2013
Tuesday, September 3, 2013
Monday, August 26, 2013
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