Saturday, March 29, 2014

Weekend of relaxation and promotion

This weekend has been pleasant. My attendant couldn't make it Friday so we made it a family day.  Laura had a half day so Jeff, Jason and I picked her up. We went shopping and lunch.  We went to Uno pizza and Laura made her own pizza. She thought it was so cool!  Jeff and I got a laugh out of it because she normally doesn't like pizza. I guess when you make it yourself, it tastes better. 

The rest of the day I sat on the couch.  You see I sit in a horrid position to type. It's called the W position and it's bad on your hips.  My physical therapist said if I want to stop the pain I need to not sit that way.

Jeff and I started the series Dowton Abbey in between nap time and after bed time for kids.  We enjoy it. It's a good story!

Today we went to Charlestown sale, goodwill.  After coming home, I helped Jeff study for a test for nursing school. 

I've been trying to promote my contest for the van but gets hard with a sore hip.  I have friends helping me so that's awesome. 

Please vote here!!

Monday, March 24, 2014

The van contest

I entered into a contest to win a new accessible van. Unfortunately, I was over a week late entering it because I didn't know about it. When I did learn about it, I felt bad taking votes away from others. Then my best friend reminded me we deserve it too, and I took the plunge.

What I didn't expect is the outpouring of love and support that I received. Friends, family and perfect strangers shared my message and voted. Since Saturday morning, I have received almost 300 votes! I am very blessed!

The hard part now is to keep people voting. Voting is until May 9 and people can vote daily. If they answer the extra question, there vote doubles. I hate annoying people. However, this s a much needed van. Mine is falling apart and has constant issues.

If you would be so kind to vote for me, please click here: voting site. It takes a few minutes to set it up but then you can smoothly vote daily.  I would really appreciate if you vote daily.  

Wednesday, March 19, 2014

One year Jason

Jason is a learning, social and on the go little boy. I am filled with joy every morning when I see his little face. He is learning constantly and just being amazing.

Jason is a very fast crawler. You here him coming with his happy crawling breath. He isn't walking on his own, but walks so well with his walker. He has learned how to steer it. Jason used to just push it into a wall and sit down to crawl away. Now he maneuvers down the hallway etc. He follows the person vaccuuming too with his walker.

He says words here and there. "Oh Wow!" " uh oh" Jason can call for his sister and say Boo! He knows the names of our animals. 

I love sitting on the floor and playing with him. He will hug and kiss me.  We play with cars, blocks, tops and all his toys. He likes to hug his octopus he just got from his grandmother for his birthday. I've seen him put toys back in their bin. Jason will sit now for more than two seconds to look at a book. 


Jason is a very good eater. He tries everything and usually like it. He's not big on cake though. He loves to eat chicken, green beans, blueberry muffins and raisins. He likes ice and Greek yogurt.

Jason tries to drive my wheelchair. But what amazes me is that he will listen when we say no for the most part. He will sit down. He might complain and I saw a few short tantrums but nothing horrible yet.

He sleeps all night and takes one 2-3 hour after lunch nap. Jason enjoys going to the library for play and story time. He goes right to the car bin. Everyone comments how social and happy he is.

Laura is the best big sister. She's sweet and will help him. She plays very nicely with him too.

Son of God

On Friday the movie, Son of God came out in theaters. I felt reluctant because I knew it was going to be emotional. CP and high emotions are a hard mix. I can't contain myself easily when hit with heavy emotions.

Jeff and I went and now I'm excited to see it again. The movie made me feel like I was watching the life of my best friend. But of course it was! Jesus is truly my ultimate best friend. He loves me even when I behave in ways He probably would not approve of.

The scenery is beautiful and music outstanding. I heard the story of the Passion several times but seeing everything put it in perspective. Yes, there were hard parts to witness. Some I had to look at the floor for a minute or two. But don't let that deter you. It's worth it even if you are a sensitive person. 

Seeing Mary watch her Son being beat and crucified ripped my heart. Having children,especially a son, I just can't imagine going through that. Mary believed in Him though and was with Jesus all of the time.

I cannot say enough about the ending. In previous movies about Jesus, the ending seemed quite quick. They often show the resurrection for a minute and end. Not the movie, Son of God. The ending left you uplifted and ready time share the Good News that Jesus remains in control. 

The movie is rated PG 13 and I agree with the rating. I'd love to have my daughter see parts of it but it reałly is too violent for someone younger than 13.

One scene struck me odd.  I'm not a Bible expert but I know the New Testament pretty well. When they were going to get the crowd to decide who they were going to set free, they only let those in that didn't know Jesus or like Him. I thought it was everybody that was in the area according to the Bible.

One thing is for sure, believers and nonbelievers should go see the Son of God. It's excellent. 

11 month Jason

It seems like yesterday I was about to go into labor. Now he will soon be a whole year old. Challenges have happened but mostly great joys. I'm one very lucky mommy!


Jason has a natural draw to cars. His favorite toy is a race car that I got him when he was about 5 months old. He pushes it all over and now even the walls making car sounds. We also have a fisher price car that he likes going in and out of. Often he goes in head first!

It's hard to say what his first word was or is. He's been saying mama for months. Up until recently, he hasn't connected it to me but is beginning to. He does say Laura quite clear though. He says, "Oh wow!" He also says Hi! Jason will mimic you so must be careful what you say.  Jason will wave to you.

Jason will do so big with his arms when you ask him how big he is. He also tilts his head to the side when saying "aw!"  He likes to clap, dance and make noises.

He sleeps just about all night and takes two naps. The second one is getting shorter. He enjoys sitting in his crib making noises and playing.

Jason gave up baby food when we went to Mexico and eats whatever we eat, just small bites. Jason isn't very picky with food.

He has two bottom teeth and his top two is coming in. Jason can walk with his dinosaur walker and other walker toy but not independently.  No rush though. He's an excellent crawler and pulls himself up anywhere on anything.

Jason seems amused by my wheelchair. He watches closely when I get in and out.  He smiles when I drive around and I know he will need to learn very early not to touch my joystick. 

He loves going out and about. He looks all around. In Mexico, he did great. He missed his carpeted floor and spacious crib though.

Jason does know the word "no" and we try not to overuse it so it keeps the importance. For the most part, he will stop. But like every kid, he sometimes looks back at you with a mischievous smile and continue his task. Then re direction. 
All I can say is this year flew by and can't believe he will be one on Thursday. Everyday is a blessing.


Friday, March 14, 2014

One person

God helped me realize something tonight. I was feeling bad that I didn't write as many articles as I'd like this week. But then I heard, in my heart, you are one person and you do enough. I suddenly felt better. Even without my kids, I always strived to do more and improve myself. Now I have two, teach four days in my home and write for the Examiner plus a few other responsibilities. At one point,  you have to breathe and know you're okay. 

Anyway, great day doing errands, cleaning, visit with my mom and playing with Jason. Jeff upgraded my iPhone after I thought I lost mine. But....it was actually in my chair stuck in a nook while I was in tilt!  So be aware when you tilt your chair what might get stuck. Luckily, he got a good deal and I got a faster phone. Score!

Thursday, March 13, 2014

Party time with my kids

Tonight Jeff had to leave for business for an hour or so. I got to spend time with my kids alone. Laura immediately lights up! She remembers when Jeff had to work late and I put her to bed herself, I made it fun. We had chocolate parties.  

It consisted of eating a few pieces of chocolate, dancing and being silly. Tonight she was excited to introduce Jason to the fun. After Jeff left, I helped her with homework. I put music on and we danced as we finished homework. Jason was dancing too.

When homework was complete, she got gold fish and some chocolate.  Jason ate gold fish and we had sine chocolate. We talked and enjoyed Jason. He loves to walk with his walker. We just know that anyday now he's going to make that giant leap forward himself. But in the meantime, we are quite happy to see him develop at his own speed.

I love watching my kids grow and have fun. I pray that they will look back at their childhood with great memories.

Wednesday, March 5, 2014

Oreo cookie memories

Today is Oreo cookie day. I have great memories about Oreo cookies. As a child, I loved seeing three of them on the plate. Yum! This was especially wonderful after a long day of school or eating dinner.

Now my memories turn to when I taught Laura how to eat an Oreo.  She was two years old.  It sounds so young when I say it but Laura was always mature for her age. I had my attendent give me a plate of cookies and then I sat with Laura in the living room.  I told her how to untwist and lick out the icing. It was so adorable.

Laura actually remembers this. As she got older, she actually didn't like the cookie part as much as the icing. But she always remembers that night I taught her.

I'm looking forward to teaching Jason as well.

Monday, March 3, 2014

Controlling a wheelchair through tongue piercing

Imagine being able to control a motorized wheelchair just by a flick of a tongue. Tongue piercings are no longer a fashion statement. They are a mode of independence. 

Engineer Maysam Ghovanloo of the Georgia Institute of Technology in Atlanta wanted to develop a better system. The process started five years ago with himself and colleagues. They eventually created a tongue piercing that allowed control of a computer and wheelchair. 

For testing, they took people without disabilities and those with. Training and learning the system was apparently very easy. It took no time to learn how to move a cursor around the screen. After learning the computer, they moved on to the wheelchair. 

Through the piercing, there is a chip that goes to an iPod or smartphone. The iPod or smartphone then connects to a computer to signal the wheelchair to move.  The process sounds long but happens quickly.

They discovered that wheelchair users could drive five times faster than the standard sip and puff systems.  The sip and puff systems control the chair by puffing in and out through a straw. People do not usually like the system because of it being right in their face. They want them to see the them and not technology.

More money is needed to go into the development. Hopefully, soon, quadriplegics and tetraplegics will be using the system. 

Sunday, March 2, 2014

Son of God

On Friday the movie, Son of God came out in theaters. I felt reluctant because I knew it was going to be emotional. CP and high emotions are a hard mix. I can't contain myself easily when hit with heavy emotions.

Jeff and I went and now I'm excited to see it again. The movie made me feel like I was watching the life of my best friend. But of course it was! Jesus is truly my ultimate best friend. He loves me even when I behave in ways He probably would not approve of.

The scenery is beautiful and music outstanding. I heard the story of the Passion several times but seeing everything put it in perspective. Yes, there were hard parts to witness. Some I had to look at the floor for a minute or two. But don't let that deter you. It's worth it even if you are a sensitive person. 

Seeing Mary watch her Son being beat and crucified ripped my heart. Having children,especially a son, I just can't imagine going through that. Mary believed in Him though and was with Jesus all of the time.

I cannot say enough about the ending. In previous movies about Jesus, the ending seemed quite quick. They often show the resurrection for a minute and end. Not the movie, Son of God. The ending left you uplifted and ready time share the Good News that Jesus remains in control. 

The movie is rated PG 13 and I agree with the rating. I'd love to have my daughter see parts of it but it reałly is too violent for someone younger than 13.

One scene struck me odd.  I'm not a Bible expert but I know the New Testament pretty well. When they were going to get the crowd to decide who they were going to set free, they only let those in that didn't know Jesus or like Him. I thought it was everybody that was in the area according to the Bible.

One thing is for sure, believers and nonbelievers should go see the Son of God. It's excellent. 

Saturday, March 1, 2014

Family update

I feel horrible when I don't blog for a few days. People do not like a neglected blog. I'll update you what's going on. 

I learned even more people think Jeff is a rock star. A week ago, we attended a funeral for one of my husband's clients. Jeff worked as a home health aide for a well respected doctor. He, unfortunately, passed away and Jeff was a selected few that was by his side his final hours.  I heard many stories about how great Jeff was and the family appreciated everything Jeff did. I felt very proud of him. As a result, he decided to become a nurse!

Laura earned her green band at the YMCA. She can swim without an adult being with her. We are proud of her!

On Sunday night, Laura talked about her biological father. My heart fell out of my chest.  I hate seeing her so sad but she has every right to be. She was sad she doesn't remember what he looks like, sounds like etc. I can only do so much.  It's hard with details because I just can't bring myself to tell her he did it on purpose. Yet all the other details draws to that conclusion. I support her talking about him though because that is her way of mourning and grieving. Just as a mom, it takes everything out of me.

Jason had fun at his first story time/play time. He was shy at first but quickly found the box of cars.  It was so cute to watch him.  He's growing up.  

On Monday morning, I woke up with pain. My back felt like a raw nerve was getting hit over and over again. I dealt with it up until Thursday. Jason had a doctor appointment and I made one too. It's nice we all go to the same practice. Jason had a great check up. He's growing normally and healthy. He is 23.6 pounds.

I have a mega muscle spasm from my neck down my back. He put me on steroids, muscle relaxers and ordered physical therapy. The medicine is working. It leaves me exhausted though but my pain has decreased.

So with Jeff's career change, I admit it's been stressful. What schedule would work? What school? When and where? Essays, applications, meetings etc. I'm not good at change and worry about the stress of exams, studying and family life But I do feel he will be a good nurse and work schedules will work well. I just need to breathe.