Sunday, May 31, 2015

27 months is so fun

What is Jason up to these days? Jason is learning in leaps and bounds.  I'm simply amazed with his learning and language development. He is 27 months and happy as ever.

On Saturday morning, I went in Jason's room to let Jeff get a few minutes of sleep.  I can't get him out of his crib, but I can talk to him and read. I pulled out a book with colors and read it twice.  Before I knew it, Jason was telling me that Lady was black, Lucky was white with black and pointed out pink!  He likes pointing out pink and blue.  He can tell you that Mommy and Daddy cars are blue. He also can point out orange.

He knows that he is two and says it clearly.  

I hear him call, "Mommy!"  He calls for me in the morning, throughout the day and at bed. I love hearing him say my name.  He is both a Mommy and Daddy boy.  After his nap, he knows Daddy is home and gets very excited.  

Jason still has a love of cars, trucks and buses like no one I have ever met.  He can hear a bus from any proximity and yell bus as he runs to catch a glimpse.  Jason talks about, "big trucks" and "cool cars."  He likes to line his cars up and says, “are you ready? 1-2-3 Go!" Then pushes the cars like a race. We also race on my deck.

He knows many letter sounds and can recognize the letters. These are often letters he has learned from observation. I have always sang the alphabet song to him. I also sing my own version- Apple, Apple Ah Ah Ah and so on.  Now he sings it too.

Jason is still easy to put to bed.  He'll follow you or lead the way to his crib. He naps about 2-2.5 hours and he will sleep about 10-11 hours a night. We aren't complaining!

Watching Jason and Laura grow is beyond fun and such a privilege.


Saturday, May 23, 2015

Speaking for nursing school

In eighth grade, I had to give an oral presentation in my English class. My classmates were so nice looking back because I was beyond nervous. When I'm nervous my CP takes flight. I had a hard time even just answering a simple question in class.  

With CP, stress makes movements and your speech so much worse than it normally is. It's something that is very hard to control but I seem to have a handle on it after a few minutes of speaking. The funny thing is I knew I wanted to be a teacher so I needed to overcome this big problem. I think I did pretty well overcoming my nervousness.

In high school, I took a public speaking class to better myself. The teacher thought I was insane and tried to talk me out of it. I stuck with it and succeeded. That class helped me tremendously with my speaking. In college, I gave several disability awareness presentations.  I think this helped me so much as well. Then winning Ms. Wheelchair Pennsylvania really helped me overcome my public speaking issues.

Jeff asked me to give a disability presentation for his class.  I haven't had the best experiences with medical professionals.  I haven't been treated with much respect or dignity. So, he wanted me to go in to educate future nurses about cerebral palsy, pregnancy and tips to educate nurses. I accepted, and even though I spoke before several times, I was nervous. Speaking in front of family is scary because they know your best and have expectations.

Jeff helped me with listening to me practice and tweek my PowerPoint.  I was honored that he felt confident to ask me to speak. The last thing I wanted to do was let him down. I took Jason with me just to introduce him to the class.  I made sure we arrived early. I enjoyed seeing his school and especially him.

After everyone saw Jason and I was set up, I began to speak. At first my body was a bit spastic but quickly relaxed.  I felt in my element and an educator at heart.  I love helping people and that is why I'm a teacher in the first place. 

The students and teachers seemed to really enjoy my presentation. I could tell Jeff was happy with it.  When he came home, he took us out to dinner to celebrate my talk.

Off to find the next presentation.

Wednesday, May 20, 2015

Laura's First Holy Communion

Laura had her first Holy Communion on Saturday, May 2. This day was definitely beyond special to me. It might sound crazy but I love being Catholic. In a day where people are going to Church less and less, I want to go more. To see my children to get the same sweet joy that I feel about Jesus makes me overjoyed.


I wanted the day to be as perfect as it could be.  I could hardly sleep I was so excited.  My attendant worked for me that day - she normally doesn't on Saturday. She helped getting me and Laura ready before we headed to Mass. Jeff took care of Jason and they met us at Mass later.

The day was flowing with sunshine and warmth. When I saw Laura in her dress, it took my breath away. I knew that she would be beautiful but it still was more than I could possibly imagine.

We went to the Church early for pictures and I'm crazy about punctuality. My Dad met us and he had tears in his eyes when he saw Laura. I amazingly kept it together.

After a bit, I took my seat in Church.  The rest of my family came as well. I kept telling my Dad not to start getting emotional or it be all over for me.  He did pretty well, I admit.

The kids came in the church two by two - boy girl normally.  It was absolutely adorable watching them come in like that.  The service was beautiful and amazing watching her receive the Holy Communion.

Afterwards, we had a small party for her. It was really nice especially the weather held out too.  She received gifts like a Bible, Rosaries, and other figurines. I gave her a lamb, snow globe that plays Jesus Loves Me, Precious moments and a new iPad case.

Now she can receive Holy Communion with me on Sunday's and any Mass service. She looks so grown up now. Jason will be receiving his in about 6 years.


Monday, May 11, 2015

Sick day

Laura stayed home today because she had a bad stomach bug yesterday. This morning she was very white and tired.  It's not easy making these decisions but all you can do is hope it's for the best.

Laura felt better as the day went on.  She and I shared many laughs and enjoyed each other. I love the true uncontrollable laughter of a child. I love being the one making her laugh.

I ordered Chinese for lunch because that was the only thing Laura wanted to eat. She ate more and more as the day continued.  We worked on her book report and spelling assignments. 

Then she took out her games and said it was family game night. We played cards, hangman and a short version of pictionary. It was so much fun. Jason ran around with his cars.

After dinner, I felt a little achey so went to change for bed. Jeff and Laura took care of cleaning the living room and kitchen. Jeff put Jason to bed and did laundry. Showing love is all in the little things that makes the heart happy.

Sunday, May 10, 2015

Mother's Day 2015

Mother's Day is a beautiful day to celebrate the gift of motherhood. When I was young, I think 5, I knew I wanted to be a mom. Not being able to never crossed my mind which is funny because so many people do not realize that people with cerebral palsy can have babies.

Laura ended up spending the night at my Dad's house. When I checked my phone, my dad texted me that Laura had been sick to her stomach multiple times during the early morning hours.  He said that she was very brave and courageous.  My heart ached for her.

She was sleeping and he told me to go to Mass and he'd keep me updated. It felt extremely weird to go to Mass alone especially on Mother's Day. But Church recharges my strength batteries and very important.

After Mass, Jeff picked me up and planned to take me to breakfast. Well, every place was booked so we just went home.  I spent lots of time with Jason before Laura came home.  Unfortunately, on her way back, she got sick for the last time In my dad's car.

Laura broke my heart when she began to cry about ruining my day.  I assured her she didn't.  She gave me a card she had chosen by herself. It bought tears to my eyes.  Then she gave me card that she helped Jason make. So sweet.

Jason napped and we had Laura on the couch. I helped Jeff study and we both checked on her throughout.  She drank some water and ate dry toast.

After Jason woke up, Jeff took him to the grocery store.  He wanted to make me a special dinner, and it was.  

He came home and served me my favorites.  First was Caesar salad and then after that was lobster tail with hot butter.  I couldn't believe how good it tasted. Better than any restaurant.

Last but not least -ribs on the grill. So so delicious.  I was definitely spoiled and loved.  Laura ate chicken noodle soup. Jason loved the Caesar salad.

As Jeff cooked, he also mowed the lawn. Pretty cool. 

Friday, May 1, 2015

Last slc of second grade

Today was Laura's last SLC (student lead conference) at the old school and in second grade.  They are moving to a new building in August.

Het teacher's said very positive things about Laura. She is friendly, flexible, easy going and smart. She is a bit chatty in math class and her grade slipped a little bit. But only less than a percentage point will bring it back up to a 90.

I am very happy with her school performance. She is an avid reader and very insightful. She amazes us each day. 

After the conference, we went to a book fair.  I spent a little more than planned but I don't mind buying books.  To me, that is an educational investment. 

I taught the rest of the day and got ready for a disability awareness presentation next week.

Jason can now say help please and thank you!