Monday, April 25, 2016

Moving right along after a mastectomy and cerebral palsy

I mainly write these blogs with the hope to get other women with disabilities to get their mammograms and treatment if necessary.  In doing my own research beforehand, all the information that I found was the fact that many women with cerebral palsy with breast cancer die. Why? Because of technology and lack of educated medical staff about cerebral palsy drives women away.

It's been about two and a half weeks since my bi lateral mastectomy and reconstruction.  The road has been a little bumpy but not anything horrible and much better than dying from cancer.  I'm able to crawl, feed myself again on the floor, type for short periods of time, drive my wheelchair, get in and out of bed, shower, stay awake all day, use my Kindle, play and parent the kids.  When getting in my wheelchair, we have adapted how I'm lifted but I think it won't be long now before we do it the old way. Also, I need some more assistance in the bathroom.

As far as pain and discomfort, I'm not going to lie, it's there.  No bra feels exactly how it used to and you need to sleep in one for three months after the surgery.  Unfortunately, my right side got the most of the pain and annoying feelings, and my right arm is my most frequently used. Reaching and putting your arms up is sore like after a gym workout and lying on your side doesn't feel quite that comfortable yet. But seriously, all of these things can be tolerated and most will go away in time.

Keeping a healthy diet (heck in the first few weeks - eat whatever you're craving. Your body has been through a lot,) trying your best, not over doing it but not being fearful of pain all help.  I remember the first time I got out of the shower myself. I was scared of falling, stretching my arm too much etc but after I just did it, all was ok.  I now take an Aleve and that keeps away prickly pain I call it.  Sometimes, out of no where, I just feel these prickes of pain in my chest.  Just like fireworks, but again not too bad.

Every woman is different and so is how they recover. Just remember that you'll have little victories but also some set backs.  You'll get there, and maybe never be the woman you were, but only stronger, wiser and confident.


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